JEZZ stands for Youth Education Rare Diseases and is intended for children of the uper grades of elementary school and middle school (ages 10-15). Rare diseases are becoming more recognized and globally Rare Disease Day is celebrated at the end of February.
We have been a world-wide organization for many years received and have received signals via our members that there is hardly any understanding is for people with a rare disease.
Practically no single website offers information about rare diseases to children (both medically and psychosocially). This was the reason for us to build this special website.